The Georgia Neurosurgical Institute

The following list of resources has been compiled to assist patients and families in understanding neurological conditions, treatments and procedures.

Epilepsy Resources

Epilepsy Foundation of Georgia (EFA)
American Epilepsy Society (AES)
American Electroneurodiagnostic Society (ASET)
Epilepsy.com
NIH Consensus Development Conference on Epilepsy Surgery
A listing of organizations providing support and education for and about epilepsy
The Epilepsy Web Page
US National Institute of Neurological Disorders and Stroke: Epilepsy Information Guide
Epilepsy Link List from Sarah Jane Blake
Epilespsy FAQ (Frequently asked questions) maintained by Andrew Patrick
Epilepsy Foundation of Victoria, Australia: EpiNet
EPILEPSY ONTARIO <info@epilepsyontario.org>

Epilepsy e-mailing list
- To subscribe send mail to LISTSERV@HOME.EASE.LSOFT.COM
- Include The following in the body of the message: SUBSCRIBE EPILEPSY-L Firstname Lastname
- To post a message send mail to epilepsy-l@home.ease.lsoft.com
Epilepsy-Pro e-mailing list (for professionals working in the field)
- To subscribe send mail to listserv@calvin.dgbt.doc.ca
- Include The following in the body of the message: subscribe epilepsy-pro Firstname Lastname
- To post a message send mail to epilepsy-pro@calvin.dgbt.doc.ca
News group: alt.support.epilepsy
A useful conversational hypertext system with information about epilepsy (telnet)

Movement Disorders

Pain

Links to more information about trigeminal neuralgia
National Institutes of Health Patient's Guide to Pain Control after Surgery
Links to information on back or neck pain and arachnoiditis: MGH/Harvard Spine Surgery Homepage
Chronic Pain Information from the (US) National Institutes of Neurological Disorders and Stroke
National Chronic Pain Outreach Association (NCPOA)
North American Chronic Pain Association of Canada
Reflex sympathetic dystrophy from the (US) National Institutes of Neurological Disorders and Stroke
USA Fibrositis Association
Newsgroup alt.med.fibromyalgia
FIBROM-L email list (50-100 postings a day!) To subscribe, send an e-mail message with a blank subject line to LISTSERV@VMD.CSO.UIUC.EDU . In the body of the message type: subscribe FIBROM-L YourFirstName YourLastName.
PAIN-L e-mail discussion list on chronic pain
- To subscribe send an email message to listserv@sjuvm.stjohns.edu . In the body of the message type: subscribe PAIN-L YourFirstName YourLastName.
- To post a message send mail to PAIN-L@maelstrom.stjohns.edu
Pediatric Pain email discussion group (mailing list).

Parkinson's Disease

Information about movement disorders such as Parkinson's disease and dystonia with special emphasis on surgical treatments such as pallidotomy.

The Parkinson's Unity Walk
Parkinson's disease information (addresses and telephone numbers of organizations)
Information of about the surgical treatment of Parkinson's disease for patients whose symptoms are not adequately controlled by an optimized medical regimen.
- A pallidotomy bibliography
- An article about basic science research in transplantation at MGH and elswhere.
- Network of European CNS Transplantation And Restoration (NECTAR) Homepage
- APDA Newsletter, Spring 1995 A Comparison of Neurosurgical Procedures in the Treatment of Parkinson's Disease
- Parkinson's Disease Update, Issue 48 Pallidotomy In Brief
- Neurology, 1995: Stereotactic Ventral Pallidotomy for Parkinson's Disease
- Stereotactic Procedure: A Guide for Patients (UIowa)
For information about the medical therapy of Parkinson's Disease at MGH see the Movement Disorders Unit Homepage
Parkinson's disease Listserve(mailing list). TO subscribe send a message with "SUBSCRIBE PARKINSN" in the body.
PDLAW: Parkinson's Disease Legal & Legislative Information Exchange (mailing list)
- To subscribe send e-mail to majordomo@efn.org with the following command in the body of the message: subscribe pdlaw [your_address] (where [your_address] is your e-mail address).
Other Parkinson's disease World Wide Web Sites
- Parkinson's Web
- The Parkinson's Digest
- Parkinson Foundation of Canada Nova Scotia Division
  - Parkinson Disease Glossary
- Parkinson Society of Ottawa-Carelton
- Parkinson's Disease Information Center from Jeffrey Kaye (including definitions and U.S. legislation)
- U.S. National Institute of Neurological Disorders and Stroke Parkinson's Disease Guide: Hope Through Research.
- Shy-Drager & Parkinson's Page
- American Association for Neurology articles about Parkinson's Disease
  - Medical management strategies in Parkinson's disease
  - Management of complicated Parkinson's disease
  - Motor slowing in aging and Parkinson's disease
- More on line articles about PD
  - Antiparkinson's: A multimedia guide by Pravin K. Mishra, Ph.D., University of Illinois, Chicago Pharmacology
  - A teaching presentation on Parkinson's Disease from Yali Friedman
  - Parkinson's disease: Making the diagnosis, selecting drug therapies by Douglis W. Scharre, MD; Michael E. Mahler, MD; From cnsonline.org
  - Parkinson's Disease - Quality of Life Issues by Barbara Fitzsimmons, RN, MS; Lisette K. Bunting, RN, MScN; From cnsonline.org
  - Special Report: Parkinson's Disease; From cnsonline.org
  - The Parkinson Patient at Home Robert S. Schwab, MD and Lewis J. Doshay, M.D.; From cnsonline.org
  - Exercises for the Parkinson's Patient; From cnsonline.org
  - Informaton Parkinson's Disease from the (US) National Institutes of Neurological Disorders and Stroke
- Indexes of Other PD WWW sites
  - Galaxy Net PD Resources
  - Yahoo's Health:Diseases and Conditions:Parkinson's Disease
  - Ithaca College Archives PD Info Sources Page

Spasmodic Torticollis/Dystonia/Spasticity Links

National Spasmodic Torticollis Association

Information on Spasmodic Torticollis

Dystonia Medical Research Foundation Dystonia Dialogue. Includes links to support groups.

Resources

Links

Neurological Information Resources

Epilepsy Resources

Movement Disorders

Pain

Parkinson's Disease

Spasmodic Torticollis/Dystonia/Spasticity Links